Rare treatment has seen success
MAX AND MORE—Nine-year-old Max Manciu has been receiving treatment for the rare disorder he suffers from and can now walk, talk and run. Two local fundraisers will help his family continue his treatment.
“Max Matters!” invites the public to participate in a pair of fall fundraisers that will help a local boy with a rare disorder continue treatment that is seeing continued success. Max Manciu, now age 9, has a peroxisomal disorder that is very rare and is inherited from both parents. With his disorder, his body is unable to break down fatty acids among other things, and life expectancy for those with this disorder is not long—usually death occurs in early childhood, if not before the age of one.
Max has been being treated by a doctor in Spain, who treated him with a type of natural oil that is not found in the United States. His doctor passed away, however, and now the family has found a doctor in Canada to continue Max’s treatment.
The family considers the results of his treatment so far to be nothing short of amazing. Max is able to walk, run and climb and is gaining his eyesight back. The family hopes to raise funds for a trust for Max’s medical costs, treatment, transportation, lodging, shipment for the oil and other costs.
Motorcycle fans will appreciate the Support Max Manciu motorcycle poker run on Saturday, Sept. 22 beginning at 240 Covered Village Mall, Belding. Registration begins at 9:30 a.m. with the ride beginning at 11 a.m. The event will have silent auctions, a 50/50 raffle, food, fun and cash prizes. For information call (616) 794-9540.
The Corner Bar in Rockford is holding a “Dogs for Dollars” night with 15 percent of food sales going to the Max Matters! fund. The event will be September 24 from 5 p.m. until close. Clip the coupon online at RockfordCornerBar.com or e-mail janwin@ameritech.net.
Comments by our Readers